What is the National Cancer Survivorship Initiative?
The National Cancer Survivorship Initiative (NCSI) is a partnership between NHS England and Macmillan Cancer Support, co chaired by Sean Duffy, National Clinical Director for Cancer, and Ciarán Devane, Chief Executive of Macmillan Cancer Support.
Originating from the Cancer Reform Strategy (DH 2007), the NCSI from 2008 – March 2013 was a partnership between Department of Health and Macmillan, with great support from NHS Improvement.
Our aim is to ensure that those living with and beyond cancer get the care and support they need to lead as healthy and active a life as possible, for as long as possible.
On March 29th 2013 we published Living with and beyond cancer: Taking Action to Improve Outcomes which will inform the direction of survivorship work in England to 2015. This document is intended to support commissioners, providers and others to take the actions necessary to drive improved survivorship outcomes. It sets out what we have learnt about survivorship, including people’s needs, their experience of care, and the impact cancer and treatment has upon their lives. It describes interventions that have been tested, and are ready to spread across England to improve survivors’ outcomes.
There are a number of key interventions that could make an immediate difference, including the introduction of an integrated package of interventions, “The Recovery Package”, which includes
- Structured Holistic Needs Assessment and Care Planning,
- Treatment Summaries and Cancer Care reviews
- Patient education and support events (Health and Wellbeing Clinic)
- Advice about and access to schemes that support people to undertake physical activity and healthy weight management.
The combination of these interventions will enable better outcomes for cancer survivors, through creating a shared understanding between patient and professionals about the issues important to the patient, what they can expect during recovery, and identifying any needs to be addressed.
This report builds on the NCSI vision document, published in January 2010, which summarised a range of evidence about the care and support available for cancer survivors, and suggested that traditional follow up arrangements – usually involving regular out-patient appointments in an acute hospital – are not meeting all the needs of survivors. The vision identified five key shifts necessary to transform cancer care and support from a one-size fits all approach to follow up to personalised care planning based on assessment of individual risks, needs and preferences.
Living with and beyond cancer [4:28]
this short film that gives a concise explanation of the story of the NCSI.
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Plans for 2014
Our work in 2014 will focus on implementation and development within four survivorship priority areas; the Recovery Package, stratified pathways of care, consequences of cancer and its treatment and PROMS, and physical activity. More information about the progress in each area is available on their dedicated pages of this website.
We will work to understand the alignment of actions necessary to improve cancer survivorship outcomes, with actions required to improve the management of long terms conditions, as we know that many of the needs are similar, such as for assessment and care planning, good information, preparation for self management, and good care coordination. This will inform our work with commissioners.
We will progress work to embed paper-based and electronic assessment and care planning tools, including the Electronic Holistic Needs Assessment (e-HNA). The electronic tool will allow the outcome of assessments to be easily shared with members of a multi disciplinary team (MDT), which will greatly improve joined-up care. Information from assessments can be filed, reviewed and shared more efficiently. The number of test sites will expand in 2014 and the e-HNA developed to include specialist tools, including one dedicated for older people.
NHS Improvement published in 2013 a document encapsulating the learning from the adult cancer testing work, Innovation to implementation: Stratified pathways of care for people living with or beyond cancer- A “how to guide”, to support implementation in practice.
The work of the NCSI was divided into the following project groups:
The work and achievements of these groups can be seen on their dedicated pages.
If you are a cancer survivor or a carer seeking immediate support, please visit www.macmillan.org.uk.
Last updated on February 5, 2014