August 20th, 2010
Health professionals and employers can now order a new booklet to help self employed cancer patients manage their work and finances. Continue reading…
Welcome to the NCSI Website
The National Cancer Survivorship Initiative was launched in September 2008 and is a key initiative of the Cancer Reform Strategy (2007).
The initiative aims to improve the ongoing services and support for those living with, and beyond, cancer – currently 1.63 million people in England, 2 million across the UK as a whole. This number is likely to grow by over 3% per annum, reflecting the increasing incidence of cancer and better survival rates.
The aim of the NCSI is, by 2012, to have taken the necessary steps to ensure that survivors get the care and support they need to lead as healthy and active a life as possible, for as long as possible.
The initiative is a partnership between the Department of Health and Macmillan Cancer Support and is co-chaired by the National Cancer Director, Professor Mike Richards, and the Chief Executive of Macmillan, Ciaran Devane.
Progress in 2010
In 2010, the NCSI is focusing on engaging service users, clinicians and commissioners to develop new models of care and gather evidence to support implementation of the five key shifts. The next key milestone of the initiative will be the development of principles and evidence for service commissioners by the end of 2010 to influence commissioning plans for 2011/12.
Seven NCSI workstreams were established, each focusing on either a stage in the ‘survivorship pathway’ or a cross cutting theme. The workstreams have since moved to a project based structure. Project Groups and their sponsors are as follows:
- Assessment and Care Planning – Ciaran Devane, Chief Executive, Macmillan Cancer Support
- Health and Wellbeing Clinics – Ciaran Devane, Chief Executive, Macmillan Cancer Support
- Managing Active and Advanced Disease – Adam Glaser, NCSI Clinical Director, Department of Health
- Consequences of Cancer and its Treatment – Jane Maher, Chief Medical Officer, Macmillan Cancer Support & National Clinical Lead, NHS Improvement
- Survivors of Childhood and Young People’s Cancers – Faith Gibson, Clinical Professor of Children and Young People’s Cancer Care, Great Ormond Street Hospital and London South Bank University
- Work and Finance – Maureen Dowling, Macmillan Lead AHP, South West London Cancer Network & Associate Macmillan Development Manager & Cancer AHP Consultant Advisor, National Cancer Action Team
- Vocational Rehabilitation – Maureen Dowling, Macmillan Lead AHP, South West London Cancer Network & Associate Macmillan Development Manager & Cancer AHP Consultant Advisor, National Cancer Action Team
- Self Care and Self Management – Jessica Corner, Chief Clinician, Macmillan Cancer Support
NHS Improvement are supporting the delivery of the NCSI through piloting models of improved care and support for adults and children and young people survivors in 37 clinical test communities around the country. See Test Communities page for more details.
Survivorship Pathway
If you are a cancer survivor or a carer seeking immediate support, please visit www.macmillan.org.uk.
Last updated on August 9, 2010