Children and Young People Prototype Sites
The Children and Young People (CYP) project group is now moving into the prototyping phase of testing.
Emerging from previous testing work, four models of aftercare have been identified:
- Traditional Principal Treatment Centre
- Shared care – where care is shared between the Principal Treatment Centre and the GP/Primary Care Services
- Nurse-led – may include variations such as a telephone/text message aftercare
- Self-management
Along with these models of care, the CYP patient pathways have been developed. These models of care will be tested along the patient pathway with four prototype test sites:
- Birmingham Children’s Hospitals NHS Foundation Trust
- Bristol Royal Hospital for Children and South West Paediatric Oncology Shared Care Network
- Great Ormond Street Hospital for Children NHS Trust
- Yorkshire Cancer Network/St James’ University Hospital, Leeds
Two workshops with the Prototyping sites have developed the framework to support the expected outcomes required by the end of September 2011. The six specific outcomes from these four sites are based on testing out the hypothesis that it is feasible across the 13 CYP Centres in England to achieve the following:
- An overall 20% reduction nationally in hospital-based Outpatient follow-up appointments; that is – those patients who are already routinely being followed up
- To consider the potential to identify a percentage follow-up reduction in terms of clinically stratified levels of care and a focus on a reduction in unscheduled follow-up care
- To incrementally work towards achieving a 100% target over a 5-year period (tolerance level to be agreed) of patients being provided with a Treatment Summary and Care Plan, that is on a prospective basis for those patients ending treatment, entering long-term follow-up, and at the transition stage
- To define the models of care and the key components of models of care
- To define practical and achievable Quality Key Indicators to support the evidence to commissioners to provide consistent, individualised care for children and young people living with and beyond cancer
- To capture robust evidence to inform the commissioning process.
Last updated on March 4, 2011