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National Cancer Survivorship Initiative

Resources for healthcare professionals

Supporting healthcare professionals to identify and manage the consequences of cancer and its treatment

Recent surveys suggest that some healthcare professionals lack the confidence and skills to manage the consequences of cancer and its treatment, particularly bowel, urinary and sexual problems. The following resources may help to address this:

The Recovery Package
Assessment and Care Planning

To aid better identification of all post-treatment needs and improve the diagnosis of consequences of treatment, the NCSI has developed and tested the recovery package . This will assist people living with a diagnosis of cancer to prepare for the future, identify their individual needs and support rehabilitation to enable people to return to work and or a near normal lifestyle. It recommends that all cancer patients should be given;

  • Holistic Needs Assessments and care planning at key points of the care pathway
  •  A Treatment Summary completed at the end of each acute treatment phase, sent to patient and GP
  •  A Cancer Care Review completed by GP or practice nurse to discuss the person’s needs, and
  •  A patient education and support event, such as Health and Wellbeing Clinics, to prepare the person for the transition to supported self management, which will include advice on healthy lifestyle and physical activity.

Macmillan CCaT have developed three products to help with the implementation of the recovery pacakge and improve care after cancer treatment – a patient booklet, a guide for professionals and a framework to help build much-needed workforce skills and confidence. For more information please visit the Assessment and Care Planning section.

Bladder problems

Body Image

Bone health

Childhood and Young Person problems

Gastrointestinal problems

GVHD

Information Prescriptions

Laryngectomy

  • Laryngectomy videos– Two films that explain the impact of living with a laryngectomy, including the communication issues that can result.

Late effects overview

Lymphoedema

  • British Lymphology Society – provides information and guidance for health professionals around assessment and referral of lymphoedema patients.

Nutrition

  • Nutritional Care online course – Macmillan Learn Zone course to help health professionals understand why nutritional care is a vital element of cancer care and how to manage and support patients’ dietary needs.

Patient information

  • Macmillan produce a wide range of resources for patients at all stages of their cancer journey including information on the consequences of cancer and its treatment. This information can empower patients to monitor their own health and to be aware of and potentially self- manage any post-treatment symptoms or issues.  For further details see the Resources for Patients page or download this helpful summary sheet. All resources are available to order free from Be.Macmillan or as downloadable PDFs.

Pain

Sexual difficulties

Stoma

Swallowing (Eating and Drinking)

Survivorship

Macmillan online course for professionals.  Survivorship.  www.learnzone.org.uk/courses/course.php?id=96

Vocational Rehabilitation

Macmillan online course for professionals on Vocational Rehabilitation.   www.learnzone.org.uk/courses/course.php?id=102

Macmillan online course for public and professionals on Working With Cancer.  www.learnzone.org.uk/courses/course.php?id=29

Tell us what you need

The Consequences of Treatment NCSI programme and Macmillan are committed to producing more quality information and guidance around the consequences of cancer treatment in 2014. If you have any suggestions for problems that you think are not currently addressed please let us know at survivorship@macmillan.org.uk .

Last updated on December 6, 2013