NCSI conference Nov 16th 2012
‘Exploring the challenges and opportunities of integrating cancer survivorship care’
Grand Connaught Rooms 61 – 65 Great Queen Street, London, WC2B 5DA
Over 400 people attended the National Cancer Survivorship Initiative conference. Delegates from a wide range of backgrounds in supporting, commissioning, delivering or using services for people affected by cancer, gathered together to learn about, and share experiences of, improving the survivorship element of the cancer care pathway.
Chaired by Stephen Hindle, Cancer Survivorship Programme Lead, Macmillan Cancer Support, attendees heard from a range of leading thinkers in the field and attended a range of workshops on the five phases of survivorship and site specific tumours.
Ciarán Devane, CEO, Macmillan Cancer Support and Martin McShane, Domain 2 Director, NHS Commissioning Board, spoke about their vision of the future of cancer survivorship care; delivered cost effectively at a national and local level, the increasing focus on cancer as a long term condition and the rationale for innovations to deliver better patient experience. They were later joined by Professor Sir Mike Richards, National Cancer Director and Domain 1 Director, NHS Commissioning Board and addressed key questions from delegates, giving their unique perspectives on key issues.
Ashley Woolmore, Partner, Monitor Group and Prof Jane Maher, Clinical Oncologist, Mount Vernon Caner Centre and Chief Medical Officer, Macmillan Cancer Support, spoke about the economic implications for cancer survivorship, and how resources can be delivered cost effectively whilst continuing to improving patient outcomes.
Bonnie Green, a cancer survivor and carer, spoke about her personal experiences and gave her views on the patient experience survey.
Juliet Bouverie, Director of Services, Macmillan Cancer Support, Adam Glaser, NHS Improvement, National Clinical Lead for CYP Consultant Paediatric and Adolescent Oncologist, Leeds Teaching Hospitals NHS Trust and Gilmour Frew, Cancer Director, NHS Improvement, provided a summary of the day and the important role everyone has to play in communication and engagement.
The conference was a huge success and enabled a coming together of key professionals who shape cancer survivorship care. It is hoped that it has provided an opportunity for further collaboration, learning and engagement to deliver increased opportunities for integrating cancer survivorship care.
Please find below the slides for the NCSI conference.
The five phases of survivorship workshops
- Supporting people through treatment
Please also see Rehabilitation for Operated Lung Cancer (ROC) manual and ROC presentation.
Liz Egan, Programme Manager, Macmillan Cancer Support; Maureen Downling, Consultant to Macmillan Working through Cancer Team; James Gillies, Service Improvement facilitator, Pan Birmingham Network
Early targeted interventions aimed at reducing predictable consequences of cancer treatment can significantly experience and outcomes. This workshop heard from two different projects: Vocational Rehabilitation and Rehabilitation for Operated Lung Cancer (ROC).
Steve Hindle, Cancer Survivorship Programme Lead, Macmillan Cancer Support; Claire Morris, National Programme Lead, National Cancer Action Team; Amanda Watson, Electronic Holistic Needs Assessment Project Manager, Macmillan Cancer Support
This workshop focused on how the development of Holistic Needs Assessment and Care Planning, Treatment Summaries and Cancer Care Reviews can help people affected by cancer to focus on what is important to them to improve care and support, and enable them to recover and return to as normal a life as possible. Delegates heard about the experience of a test site, the resources available and the importance of providing information and education on a range of topics to help rehabilitation.
Anne Wilkinson, National Improvement Lead, NHS Improvement; Andy Turner, Senior Research Fellow, Coventry University; Johnathan McFarlane, National Clinical Advisor on Prostate Cancer, NHS Improvement
This workshop looked at ways in which both patients and professionals can contribute towards sustaining recovery. The session examined the role of support programmes in helping people to improve their psychological, physical and emotional wellbeing following completion of treatment and to support people to return to a position where they feel in control of their own lives. This workshop also looks at the role of professionals in monitoring surveillance tests; how this can be provided remotely for those enrolled to self-management or open access pathways, and the provision of rapid re-access to the service if things go wrong.
Jane Maher, Clinical Oncologist, Mount Vernon Caner Centre and Chief Medical Officer, Macmillan Cancer Support; Lesley Smith, Project Manager, Consequences of Treatment, Macmillan Cancer Support; Emily Bowman, Survivorship Project Officer, Macmillan Cancer Support
Recent studies have shown that patients who have received pelvic radiotherapy for pelvic cancers are still not getting the help they need to manage problems such as bowel, bladder and sexual dysfunction. This workshop explored how outcomes for patients could be improved using examples from research conducted by the NCSI across the UK.
Noeline Young, NCSI Project Manager, Macmillan Cancer Support; Julia Reynolds, Research and Evaluation, Macmillan Cancer Support.
This workshop focused on identifying issues for those living with advanced disease. The session focused on language used, using multidisciplinary approaches to care, transitions to end of life care and early results from test work. Facilitators outlined the work of the Macmillan Palliative Care Collaborative (MacPaCC) which has carried out a number of studies relating to evaluating services, staff rolls and tools in active and advanced disease. An overview of the unique qualities of a community of influence and how it helped Macmillan in developing an understanding in this area was given. An exemplar of the work of MacPaCC was summarised in the evaluation of the Macmillan Midhurst model of Community-led Specilist Palliative Care.
Tumour type workshops
The following workshops provided delegates with an overview of the case for change within specialty areas. These sessions focused on stratified pathways, key enablers and how to go about redesigning follow up services using the learning from testing within clinical terms. Sessions also contanined facilitated discussions around the issues and challenges and identified how to overcome them.
Facilitated by Dorothy Goddard, National Clinical Lead for Breast Cancer Survivorship and Consultant Radiologist, NHS improvement and Royal United Hospital; Julia Ozdilli, National Improvement Lead, NHS Improvement.
Facilitated by Gill Levitt, Clinical Lead for CYP Workstream, NCSI/ Macmillan; Patricia Morris, Director – Cancer, NHS Improvement; Faith Gibson, Clinical Professor of Children’s and Young People’s Cancer Care at Great Ormond Street Hospital for Children NHS Foundation Trust and London Southbank University.
Facilitated by John Griffith, Consultant General Surgeon, Bradford General Hospital; Anne Wilkinson, National Improvement Lead, NHS Improvement.
Facilitated by June Davis, Macmillan Network Lead AHP, Dorset Cancer Network; Verena Cooper, Network Lead Nurse, Dorset Cancer Network.
Please also see the ROC manual for reference
Facilitated by Sarah Doffman, Consultant Respiratory Physician, Brighton and Sussex University Hospitals; Noeline Young, NCSI Project Manager, Macmillan Cancer Support; James Gillies, Service Improvement Facilitator, Pan Birmingham Cancer Network.
Facilitated by Jonathan McFarlane, National Clinical Advisor on Prostate Cancer, NHS Improvement; Miranda Benny, Macmillan Uro-oncology CNS, Royal United Hospital Bath NHS Trust.
Part sponsored by:
Last updated on April 26, 2013